Everyone living with MND deserves the right care, in the right place, at the right time, regardless of their age, location or background. We know many people living with MND across Australia are struggling to get the care and support they need, when they need it and that’s we have launched MND Action – a campaigning hub that gives those in the MND community a platform to make sure their voice is heard by politicians, decision makers, Government and service providers to raise awareness and ensure people with MND get the care and support they need and deserve. Together, we can create positive change in Australia for people living with MND their families and carers. 

Campaigns
Check out our current campaigns and find out how to get involved
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Join the Network Join our MND Action network to recieve regular updates on our campaigns Find out more
News Catch up on the latest news from MND Action
 
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We campaign to ensure the voices of people with MND are heard by decision makers and to bring about positive change for people living with MND, their families and carers. We believe in putting people with MND at the heart of all our campaigning work which is why campaign on issues that that matter to them. 

We looked at what the most prominent issues people living with MND were facing in Australia and put together the Action Framework to act as the backbone and guide the issues we choose to campaign on. The framework seeks six commitments from our politicians and policy makers to improve the lives of people living with MND and their families:

  1. Improvements to aged and disability care
  2. Timely access to a full range of assistive technology
  3. Development of National MND Guidelines
  4. Access to fully funded genetic services for families with identified genetic mutations 
  5. A specific commitment to fund specialist MND multidisciplinary clinic coordinators
  6. Increased investment in research

Read the full MND Australia Action Framework.

With your help we can make sure the voices of people living with MND, their families and carers are heard by our politicians, decision makers, Government and service providers to raise awareness and ensure people with MND get the care and support they need and deserve. 

If you want to join us, please sign up and join our MND Action Network to find out more about ways you can participate and all our latest news and updates.